Rage of the Heart #writeme30

 

Earlier this week I attended the launch of a very special book about my little friend Kaitie.

The photo for this week’s #writeme30 post has been supplied by Kaitie’s mum Kimberlee Francis, one of my very dear friends and shows Kaitie and Kim during one of their many hospital visits.

Kaitie is only 9 but has endured more than 30 operations as a result of the rare genetic disorder she was born with. She was born with Mucopolysaccharidoses Type 1, one of a group of incurable diseases known as MPS, which can cause intellectual impairment, eye and hearing problems, bone and joint malformation and heart and breathing difficulties. You can read more about MPS on the MPS Australia website here. And more about the launch of Kaitie the Courageous here, plus listen to Kim’s moving speech as part of the launch:

This week’s #writeme30 post:

The Photo:

Kaitie and Kim                                            Photo supplied by Kim Francis

The Response – Rage of the Heart:

 

I will hold you.

With my hands shaking.

Eyes raking white walls.

Lips straining cold sheets.

Palms caught in held time.

Fingertips glimpsed and softened.

Ready.

 

I will hold you.

In these new hours. Fresh and quiet.

The edge of falling again.

Your fingers will curl in mine.

I will squeeze back.

My heart will hang itself on the back of the door.

And beg my dreams to tangle into your sleeping hair.

I will find myself there.

The echo. The possibility.

The singing sigh of a tomorrow me.

 

I will hold you.

With smiles staining my tears.

With tears biting my smiles.

 

I will hold you.

Today. Tonight. Tomorrow.

I will hold you.

*

 

And here’s Amaya modeling Kaitie the Courageous at the launch:

Amaya with Courageous book

You can purchase a copy of Kaitie the Courageous via the MPS Society by emailing info@mpssociety.org.au or head to their website here. You can also read more about Kaitie’s journey here.

PS – If you happen to be getting married anywhere in South Australia. Kim also happens to be an ace marriage celebrant (she married us earlier this year in March on the stage of the Chaffey Theatre) – go ahead and like her facebook page here.

 

 

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